Part 1 – 13th December
I was talking with a friend of mine, Lorraine, a single parent who has a 22 year old daughter who is special needs and she mentioned how she wanted to find more support for her and her daughter. Children are truly the greatest blessing in anyone’s life. That doesn’t mean that rearing them is easy :-) . There never seems to be enough time or energy to stay on top of the “managing” – logistically – of their lives.
But when you have a child that is special needs, a disability, disease, those demands; time, energy, resources and finances seem to spiral out of control. Your time is focused on immediate needs. I asked Lorraine if she wouldn’t mind showing me all her paper files. She looked so uncomfortable, so sad. “There are no “files” Isolde” she said, “there are just boxes and boxes of papers. I make sure I keep everything but I don’t have the time to sort them”.
After taking a look at all of Lorraine’s files and discussing all the demands of her day to day life I resolved to take up the challenge and use this blog to chronicle the many areas and needs of organizing the life of a child with special needs.